Studien / Umfragen
๐๐๐ฅ๐ฉ ๐ฌ๐ก๐๐ฉ๐ ๐๐ฎ๐ฌ๐ญ๐ซ๐๐ฅ๐ข๐๐ง-๐ฅ๐๐ ๐๐๐๐ ๐ซ๐๐ฌ๐๐๐ซ๐๐ก
๐๐๐ฅ๐ฉ ๐ฌ๐ก๐๐ฉ๐ ๐๐ฎ๐ฌ๐ญ๐ซ๐๐ฅ๐ข๐๐ง-๐ฅ๐๐ ๐๐๐๐ ๐ซ๐๐ฌ๐๐๐ซ๐๐ก
TAMS is proud to invite eligible community members to participate in a The University of Melbourne research project led by Master of Genomics and Health student Jackson Rees, with assistance from TAMS.
The project explores patient experiences of MCAD diagnosis and genetic testing, including KIT D816V and TPSAB1 testing, access to testing, how clearly results were explained and their role in clinical discussions.
๐ท๐๐๐๐๐๐๐๐๐๐๐๐ ๐๐ ๐๐๐๐๐๐๐๐ ๐๐๐๐ ๐๐๐๐ ๐๐๐๐๐ ๐ป๐จ๐ด๐บ ๐๐๐ ๐๐๐๐๐๐ ๐๐๐๐๐๐๐๐๐๐๐ ๐ ๐๐๐๐๐๐๐๐๐๐ ๐๐๐ ๐๐๐๐ ๐๐๐, ๐๐๐ ๐๐๐๐๐ ๐๐, ๐๐๐๐๐๐๐๐ ๐๐๐๐ ๐๐๐๐๐ ๐๐ ๐จ๐๐๐๐๐๐๐๐. ๐พ๐ ๐๐๐๐๐๐๐๐๐ ๐๐๐๐๐ ๐๐๐ ๐๐๐ ๐๐๐๐๐๐๐๐ ๐๐ ๐๐๐๐ ๐๐๐๐๐ ๐๐๐๐๐๐ ๐๐๐๐๐ .
๐๐ญ๐ฆ๐ข๐ด๐ฆ ๐ณ๐ฆ๐ข๐ฅ ๐๐ข๐ค๐ฌ๐ด๐ฐ๐ฏโ๐ด ๐ณ๐ฆ๐ค๐ณ๐ถ๐ช๐ต๐ฎ๐ฆ๐ฏ๐ต ๐ฆ๐ฎ๐ข๐ช๐ญ below ๐ค๐ข๐ณ๐ฆ๐ง๐ถ๐ญ๐ญ๐บ ๐ฃ๐ฆ๐ง๐ฐ๐ณ๐ฆ ๐ฅ๐ฆ๐ค๐ช๐ฅ๐ช๐ฏ๐จ ๐ธ๐ฉ๐ฆ๐ต๐ฉ๐ฆ๐ณ ๐ต๐ฐ ๐ฑ๐ข๐ณ๐ต๐ช๐ค๐ช๐ฑ๐ข๐ต๐ฆ.
Dear TAMS community,
This email is being sent to invite you to participate in the research study survey for the project โGenomic Testing for Clonal Mast Cell Activation Disorders: Access, Experience and Current Practiceโ. We are contacting individuals within the mast cell activation disorder (MCAD), also known as mast cell disease (MCD), community in hopes of recruiting people who have received a positive diagnosis of mast cell activation syndrome (MCAS) or mastocytosis. To participate we require you to be over the age of 18.
This study aims to highlight genetic testing in the landscape of MCADs, more specifically, within MCAS or mastocytosis. This includes the utility, accuracy, and prominence of genetic testing currently within the diagnostic process.
The survey has 3 sections and will take roughly 10 minutes to complete. The survey will include questions regarding personal medical history, including diagnosis and testing. Surveys will be anonymous.
To complete the survey or read further information, please click the link below. This will take you to the survey consent and participant information page. For further questions or concerns, do not reply to this email; please use one of the contacts provided on the information page.
Regards,
Jackson Rees, BSc
Master of Genomics and Health
University of Melbourne
TAMS is proud to invite eligible community members to participate in a The University of Melbourne research project led by Master of Genomics and Health student Jackson Rees, with assistance from TAMS.
The project explores patient experiences of MCAD diagnosis and genetic testing, including KIT D816V and TPSAB1 testing, access to testing, how clearly results were explained and their role in clinical discussions.
๐ท๐๐๐๐๐๐๐๐๐๐๐๐ ๐๐ ๐๐๐๐๐๐๐๐ ๐๐๐๐ ๐๐๐๐ ๐๐๐๐๐ ๐ป๐จ๐ด๐บ ๐๐๐ ๐๐๐๐๐๐ ๐๐๐๐๐๐๐๐๐๐๐ ๐ ๐๐๐๐๐๐๐๐๐๐ ๐๐๐ ๐๐๐๐ ๐๐๐, ๐๐๐ ๐๐๐๐๐ ๐๐, ๐๐๐๐๐๐๐๐ ๐๐๐๐ ๐๐๐๐๐ ๐๐ ๐จ๐๐๐๐๐๐๐๐. ๐พ๐ ๐๐๐๐๐๐๐๐๐ ๐๐๐๐๐ ๐๐๐ ๐๐๐ ๐๐๐๐๐๐๐๐ ๐๐ ๐๐๐๐ ๐๐๐๐๐ ๐๐๐๐๐๐ ๐๐๐๐๐ .
๐๐ญ๐ฆ๐ข๐ด๐ฆ ๐ณ๐ฆ๐ข๐ฅ ๐๐ข๐ค๐ฌ๐ด๐ฐ๐ฏโ๐ด ๐ณ๐ฆ๐ค๐ณ๐ถ๐ช๐ต๐ฎ๐ฆ๐ฏ๐ต ๐ฆ๐ฎ๐ข๐ช๐ญ below ๐ค๐ข๐ณ๐ฆ๐ง๐ถ๐ญ๐ญ๐บ ๐ฃ๐ฆ๐ง๐ฐ๐ณ๐ฆ ๐ฅ๐ฆ๐ค๐ช๐ฅ๐ช๐ฏ๐จ ๐ธ๐ฉ๐ฆ๐ต๐ฉ๐ฆ๐ณ ๐ต๐ฐ ๐ฑ๐ข๐ณ๐ต๐ช๐ค๐ช๐ฑ๐ข๐ต๐ฆ.
Dear TAMS community,
This email is being sent to invite you to participate in the research study survey for the project โGenomic Testing for Clonal Mast Cell Activation Disorders: Access, Experience and Current Practiceโ. We are contacting individuals within the mast cell activation disorder (MCAD), also known as mast cell disease (MCD), community in hopes of recruiting people who have received a positive diagnosis of mast cell activation syndrome (MCAS) or mastocytosis. To participate we require you to be over the age of 18.
This study aims to highlight genetic testing in the landscape of MCADs, more specifically, within MCAS or mastocytosis. This includes the utility, accuracy, and prominence of genetic testing currently within the diagnostic process.
The survey has 3 sections and will take roughly 10 minutes to complete. The survey will include questions regarding personal medical history, including diagnosis and testing. Surveys will be anonymous.
To complete the survey or read further information, please click the link below. This will take you to the survey consent and participant information page. For further questions or concerns, do not reply to this email; please use one of the contacts provided on the information page.
Regards,
Jackson Rees, BSc
Master of Genomics and Health
University of Melbourne
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